We may not have posted recently, but that doesn't mean things haven't been just as crazy as usual! Plenty has happened in the last few months so let me see if I can get everything up to speed.
Noah started pre-school at Del Sur at the end of last year. He gets picked up and dropped off by the bus four days a week. Let me tell you that Mommy was a bit of a mess watching her little boy head off to school that first day, but he is doing very well and has made many new friends in his class. All the kids ask about him on the weeks he is off for therapy and they all seem to be very fond of him.
Noah's therapy plans have changed a bit too. While up at NAPA Center Robin met many Mom's that were in situations very similar to our own. She met a mom (who is now a good friend), who has an 11 year old son who had many of the same kinds of challenges that Noah had when he was 3-4 years old (Noah’s age). This 11 year old boy has overcome tremendous obstacles, in large part to some of the therapies he went through (and continues to do). His Mom has been a tremendous resource for us and specifically recommending Noah see:
Dr. Viola Frymann, D.O., F.A.A.O., F.C.A., - an osteopathic physician practicing comprehensive osteopathy of the whole body including the cranial field. Her practice and training is internationally recognized.
www.osteopathiccenter.org
and
Dr. Maralee Platt – Guild certified Feldenkrais practitioner, ABM practitioner, and Masgutova trained. Dr. Platt combines the most effective techniques from Feldenkrais, the Anat Baniel Method for Children, and Masgutova Therapy to facilitate an improvement in body mechanics as a means of promoting cognitive development in children.
www.anatbanielmethod.com
www.feldendraisinstitute.org
www.masgutovamethod.com
Noah has been seeing these doctors a lot in the last 4 months, about 8 times each in every month.
These alternative therapy approaches are quite different then the traditional physical therapy Noah has been receiving. The doctors assert that Noah needs to better organize his body (he doesn’t recognize he has a spine, knees, elbows, etc.) before going back into P/T Bootcamp (NAPA Center). They recommend putting off NAPA Center for another year or two. We’ll see about that, as Napa was a great place for Noah where we saw some definitive improvements, but our research and the testimonies of some of the parents Robin met at NAPA have led us to believe that this is worth a try.
Unfortunately these therapies are considered too experimental for our insurance company to cover, but we do feel that we have to give them a try at least for a while to see if they can be of assistance. So stay tuned for some fun events in the near future! Hopefully I can do a little better in the poker games this time...
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Hi Pete--
ReplyDeleteCarly pointed me to this blog a while back, and I have just been amazed at what you have been through. I don't know if I wrote to you when I first read through it... I just wanted you to know that I have you and Robin in my thoughts...
We have also had some struggles with our son, who is a special needs, possibly twice exceptional, amazing kid who tends to be explosive. I have just the tiniest understanding of what you have been through, and I know that your marriage must be rock solid to have survived the stress. You have a beautiful family!
take care ~
Becca (Flitton) Ciancanelli